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Collective Narratives and the Critical Medical Humanities

Type: Virtual

Description

The illness narrative might arguably be the most prominent genre within medical and health humanities research, and the “narrative turn” of the 1990s certainly contributed to the rise of scholarship on stories of illness (e.g., Kleinman 1988, Frank 1995, Toombs 1992, Hunsaker Hawkins 1999). In recent years, however, the link between illness and narrative, and therefore the approach to the genre of the illness narrative, have been challenged by several scholars (e.g., Jurecic 2012, Woods 2011, 2014, Bolaki 2016, Mattingly 2000, Wasson 2018) – the so-called second wave of, or critical medical humanities research. The focus of these works has been on questioning the “chronological causality and unity” (Bolaki 2016, 6) of narratives that continue to privilege “the individual journey of a self-authoring patient” (Wasson 2018, 106) and that downplay the interpersonal, the social context, and the structural. What opens up if, instead, we turn away from this individual performance to address the communal, the collective? Continuing in the vein of a critical approach, this seminar examines the discursive landscape of illness to understand how, as communities, we narrate illness experience and to gauge how such narratives are able to “repair the relationship of individuals to their communities and to revive a commitment to citizenship” (Jurecic 2016, 18). The seminar does not suggest a prefixed understanding of what constitutes a collective illness narrative and, indeed, it welcomes a plurality of theoretical approaches to think the “collective” – we-narrative, multiperson narration, communal narration, polyphony, assemblage –; of methodologies (literary and qualitative, collaborative, and participatory); of medium and genre – textual, visual, fiction, documentary. Taking on such a multifocal approach, this seminar wishes to attend to the politics of the collective illness narrative, both stylistically and conceptually, and to think beyond exclusionary visions of “us” vs “them”, “human” vs “non-human” divides.  
Contributions could address, but are not limited to, questions such as: How do communities narrate experiences of illness? What narrative forms and practices emerge when we focus on plurality and collectivity in narrative? How does the collective narrative relate to collective action and other forms of resistance to neoliberal conceptions of illness and health? How does the collective narrative attend to non-verbality? What can decolonial and intersectional frameworks contribute to the theorization of the collective narrative? What tensions and frictions emerge within a collective narrative? How do these narratives nurture a critique of the anthropocentric bias of storytelling?
The selected presenters will be invited to submit their papers to a special issue.
 

Schedule

Friday, May 30, 2025
2:30 PM CDT - 4:15 PM CDT
Room: 2025 Annual Meeting > Conference Rooms

Papers

Illness as narrative, narrative about illness: Making storied sense of ME/CFS
Katharine Cheston
Intersubjectivity, collectiveness and spaces of individuation in epilepsy narratives: a focus on the seizure diary
Claire Jeantils
On Anthologies and Autistic Self-Advocacy
crystal Lie
Francesc Tosquelles and the Construction of Collectivity
Candela Potente
Illness, Loss, and Relationality: The Audience as Collective in Theatre and Shared-Reading Practices
Zoë Ghyselinck
Saturday, May 31, 2025
2:30 PM CDT - 4:15 PM CDT
Room: 2025 Annual Meeting > Conference Rooms

Papers

Speaking Alone, Speaking Together: Early Pandemic Writing as a Collective
Sara DiCaglio
Prescription for a Sick Empire: Modernizing Institutions and Literature
Büşra Şengül
A Disability-Forward Approach to Collective Illness, Public Health, and Community in Petrarch and “El príncipe melancólico”
Alani Hicks-Bartlett
Communities of Care in the Public Health Novel
Derek Ettensohn
Challenging Narratives: Musicking as Collective Narrative During the Spanish Flu Pandemic in Azerbaijan
Aria Torkanbouri
Sunday, June 1, 2025
12:30 PM CDT - 2:15 PM CDT
Room: 2025 Annual Meeting > Conference Rooms

Papers

The Genetic Narratives between Cloning and Infection in The Tiger Flu
Ningning Huang
Relational Storytelling and Transgenerational Trauma in the Works of Igiaba Scego and Katja Petrowskaja
Katrin Wehling-Giorgi
Disenchanting Illness as Personalised Metaphor: Discursive Transformation in Disease Narratives in Chinese Literature and Art of the Last Decade
Chen Wang
Immanent Transcendence and Nested Narration in Phasawne Mpe’s Welcome to Our Hillbrow
Psyfun Mustary